Welcome to my world....My husband and I have three crazy and hilarious little boys. They keep us smiling and laughing everyday. Our 5 year old suffers from Eosinophilic Colitis and we need as many positive moments as we can as we help him to thrive and try to lead as normal a life as possible :)

If you are new to this blog, please follow this link to
The Story of Bryce, it was my first posts published and will give all the information needed to understand the life that my son lives....

Happiness is nothing more than good health and a bad memory.
Albert Schweitzer

It's bizarre that the produce manager is more important to my children's health than the pediatrician.
Meryl Streep

Let medicine be thy food, and food by thy medicine.
Hippocrates

We cannot direct the wind, but we can adjust the sails.
Unknown

Friday, July 19, 2013

27

A couple of weeks ago we went in for another round of Bryce's testing. As always he was such a brave kid. We were really hoping for some good news on some of his allergens. As a reminder, he has been peanut, tree nut, sesame, wheat, rice, rye and corn free for a couple of years now. He was coping pretty well with eliminating these foods. However, he was having flare ups more often than we felt he should have been. With school approaching this year, it was time to do some more testing. We really were not prepared for the results we got....

We checked in and were taken back to a room and he got comfortable, the skin prick tests are never pleasant, but he has been through it so many times, he knows what to expect. As usual, Jim and I snuck a look at the trays that they would be using so that we would have some idea as to what was coming up positive. I mean, who can really wait a whole thirty minutes for the test to be completed and the doctor tell us? :) The hope was that either corn or rice would have dropped off, making his diet and life so much easier. It never occurred to us that more than an item or two may be added.

As we sat there in the little room, watching despicable me, things took a turn. His little back begin to get red and swollen in too many spots to count. At the five minute mark, the doctor rushed in and removed several of the test spots, cleaning them off and saying it was too dangerous for him to continue those tests, they were obviously very positive. When she left the room, Jim and I began to compare the trays to the test sites. The biggest spots were our main concerns, we started checking off the things we already knew about. The corn was huge and inflamed, but wait, was that corn? No, it was just so close to another that we had been mistaken, it was actually chicken. We stood shocked, not chicken?! We've never had a meat allergen before and chicken is a staple in Bryce's diet. Another came up, potato, then it just got worse, egg, milk, carrots.... We just couldn't believe what we were seeing.


The doctor returned and starting checking all of the sites, she kept checking things off on her clipboard. I kept wanting to yell, no! Stop! That's enough already! About halfway through her evaluation she leaned down to him and said, 'Oh Bryce, I'm sorry.' I knew at this point that we had been right in our uneducated evaluations. Things were getting ready to change for our little man in a big way, again. She went over the results, answered the few questions we could think of, considering our shocked state, and we checked out.

We loaded the boys in the car and I looked at the sheet in my lap. 27. We had gone from 8 allergens to 27. Jim looked at me and said, 'Keep it together, it will be ok, we will figure it out, be strong for Bryce.' It was simply unbelievable. The week prior we had spent several days at the lake on our annual trip with friends and Bryce had been healthy the whole time we were there. That evening as I read the list off to my girlfriends, they said, but we fed him all those things last week. Oatmeal and eggs for breakfast, smoked chicken and potatoes. He had managed so well, how can it be so different now? Sometimes with allergies, there is no explanation other than, it just is.

I made a few calls, sent a few emails, posted a list of new allergens on Facebook and got to work. The meals  around here have changed drastically in the last couple of weeks, but for the better. Everyone is dealing with his changes well, including Bryce. He does miss potato chips, chicken and oatmeal. But, he has felt much better than he has in a long time. At this point we have cleared our two week healthy mark and began trialing potatoes. Hopefully one of his prior safe foods will be a false positive and he can have some of the things he loves! For now, we keep pushing forward, trialing foods and as always, hoping for the best.

Bryce's food allergens as of July 2013:
Peanuts         Garlic
Tree nuts       Chocolate
Pecan            Carrots
Cashew         Green pea
Almond        Potato
Sesame         Pineapple
Cows milk    Banana
Shrimp          Orange
Egg              Lobster
Corn             Crab
Oat               Catfish
Rice             Tuna
Rye              Chicken
Barley